About ACC

living with ACC

The Corpus Callosum is the biggest connecting pathway in a person’s brain. It has more than 200 million nerve fibers connecting your left and right sides of the brain. There are  3 different kinds of corpus callosum disorders:

Complete Agenesis of the Corpus Callosum is where the corpus callosum fails to form, at all. It is completely absent.

Partial Agenesis of the Corpus Callosum is where the corpus callosum only partially forms.

Hypoplasia of the Corpus Callosum is where the corpus callosum formed, but is smaller and thinner than it should be.

It seems that the broad range of symptoms apply to each type of corpus callosum disorder. Simply because a corpus callosum is only thinner, instead of absent, does not mean the outcome will be any better or worse.

The percentage of people with ACC is not certain with out everyone Getting an MRI but estimates of how many people have corpus callosum disorders vary greatly. Some estimates say as many as 1 in 4000 children may have ACC, however, others  believe it may be as rare as 5 in a million.  Sometimes ACC is a result of a bigger genetic disorder, but not one cause has been identified. Some things that can cause ACC, but often ACC occurs without any known cause.

I hope to spread awerness by wearing orange and yellow on Septemeber 28th!

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